{"id":2106,"date":"2011-08-25T09:14:16","date_gmt":"2011-08-25T13:14:16","guid":{"rendered":"http:\/\/susansenator.com\/blog\/?p=2106"},"modified":"2011-08-25T09:39:38","modified_gmt":"2011-08-25T13:39:38","slug":"its-not-about-your-autism-approach-its-about-your-humanity","status":"publish","type":"post","link":"https:\/\/susansenator.com\/blog\/2011\/08\/its-not-about-your-autism-approach-its-about-your-humanity\/","title":{"rendered":"It’s not about your autism approach; it’s about your humanity"},"content":{"rendered":"

For Therese<\/em><\/p>\n

It’s a funny thing about autism dogma.\u00a0 Those under the sway of one kind or another are almost evangelical in their beliefs.\u00a0 They see all autism success (or failure) in terms of how closely one has followed the True Path.\u00a0 I think that I detest dogmatic thinking more than most dogmas themselves.\u00a0 I detest dogmatists and yet sometimes secretly am jealous over their certainty.\u00a0 I rarely feel certainty about anything.\u00a0 I experience reality and relationships as ephemeral, not static.\u00a0 I search for solidity but rarely find it.\u00a0 I’d be a terrible politician, because I flip-flop constantly, both in mood and belief.\u00a0 As a Libra, (and dedicated flake) I see many sides to a situation or person at once.\u00a0 And seeing them, I must acknowledge them.<\/p>\n

I remember when I was much younger and I pursued the belief that vaccines cause autism.\u00a0 I went back in time and I remembered the day I had sat Nat on the examining table in Dr. Kerbel’s office while he got his MMR shot.\u00a0 Nat had looked up at us, his eyes blinking back surprised tears, and he had smiled.\u00a0 I remember thinking in the years after that, “Was that the moment It happened?”\u00a0 And saying to Ned, “If indeed the MMR caused Nat’s autism, I want to kill myself.”\u00a0 For me, the response was never to blame pharmaceuticals, doctors, anyone else but myself.\u00a0 I was his mother and I let him get that shot.\u00a0 At times I have felt jealous about the anti-vax certainty and anger, because I never felt any of that.\u00a0 It would have been a relief to have felt that, I think.\u00a0 Then I wouldn’t have had to feel that terrible laceration of responsibility.<\/p>\n

But time passed and I could not ignore the research, the articles, the discussion with doctors I respect.\u00a0 And I could never get past my own inability to believe in one answer and stick with it.\u00a0 I have never even been able to make The Vaccine Controversy be my main autism theme, my Issue, because I can’t even sustain enough passion or interest in it.\u00a0 And also, there were too many other factors I could not deny, namely, that Nat had always seemed different somehow, even as a newborn.\u00a0 Wistful, my grandma called him.\u00a0 Vistful.<\/em><\/p>\n

Inevitably, my slippery mind flops from the question of etiology and blame, to something else, or just back to Nat, and Nat alone.<\/p>\n

So it’s Nat — and my own lack of convictions and theories and favored approaches — that drives me.\u00a0 Nat drives me, and also, the people in his life who have made a difference.\u00a0 It is ironic that Nat has attended an ABA school for nearly eleven years, given how my perceptions fluctuate.\u00a0 What is more ironic is the reason we have stuck with the school:\u00a0 the diversely talented individuals they hire there.\u00a0 While Nat’s school prides itself on strict ABA to the point where they believe that their intensive teacher training renders each teacher the same, what I love about the school is that each teacher is gloriously different.\u00a0 The ABA-ists want to see their success as being about metallic gray consistency, where “a staff” is interchangeable with another, and that progress is about carefully measured antecedents and consequences to a given behavior.\u00a0 But what I’ve seen over the years is that consistency is overrated.\u00a0 I know that, because I’m often inconsistent.\u00a0 And where years ago an ABA teacher commented that Nat would only do as well as the efforts I made to be consistently ABA-ic, I find as an older mother that it is Nat’s flexibility and my spontaneity that have wrought some of the best aspects of our life together.\u00a0 Yes, of course it would be great if I could more frequently create a schedule and stick to it, follow the same system of rewards the school uses.\u00a0 Nat might be less anxious if I did that.<\/p>\n

But because Nat has known fluctuation in his mother, he has become a person who is sensitive to moods in others.\u00a0 He knows every inflection of my voice, every shadow that passes over my eyes.<\/p>\n

The best teachers Nat has ever had know this about him.\u00a0 They know when to gently push aside the curtain of their training and simply pat him on the shoulder.\u00a0 They lift him out of the constricting lines of the data graph and hold him in their hands, just Nat.\u00a0 He does this because that teacher spoke harshly to him.\u00a0 He did that because that person disregarded him.\u00a0 He reacted this way because he did<\/em> use his words but you still did not honor them.\u00a0 The best teachers do not adhere to one solid principle of pedagogy; they get to know the student and respond accordingly.<\/p>\n

Nat has had more than his share of wonderful teachers, at his current school and previously.\u00a0 Pretty much all of them have been terrific, except for that handful at the Unnamed Collaborative, when he was 10, the place that traumatized me more than it did him, and turned me into Mrs. Jumbo, Dumbo’s Mad Elephant Mom.<\/p>\n

Anyway, this is a long-winded way of saying that probably One of The Best teachers Nat has ever had,\u00a0 humane, creative, loving, with whom I trusted him on his last trip to Colorado:\u00a0 Therese.\u00a0 Is leaving the school.\u00a0 She is moving on to the public schools.\u00a0 We will miss her so much.\u00a0 I could not begin to thank her for the love and spontaneity and creativity she showed Nat.\u00a0 My feelings of love and gratitude to Therese are one of the unwavering truths in an otherwise changeable life.<\/p>\n","protected":false},"excerpt":{"rendered":"

For Therese It’s a funny thing about autism dogma.\u00a0 Those under the sway of one kind or another are almost evangelical in their beliefs.\u00a0 They see all autism success (or failure) in terms of how closely one has followed the True Path.\u00a0 I think that I detest dogmatic thinking more than most dogmas themselves.\u00a0 I […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-2106","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/pSTth-xY","jetpack_likes_enabled":true,"jetpack-related-posts":[],"_links":{"self":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts\/2106","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/comments?post=2106"}],"version-history":[{"count":4,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts\/2106\/revisions"}],"predecessor-version":[{"id":2108,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts\/2106\/revisions\/2108"}],"wp:attachment":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/media?parent=2106"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/categories?post=2106"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/tags?post=2106"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}