{"id":2171,"date":"2011-10-19T17:52:17","date_gmt":"2011-10-19T21:52:17","guid":{"rendered":"http:\/\/susansenator.com\/blog\/?p=2171"},"modified":"2011-10-19T17:52:17","modified_gmt":"2011-10-19T21:52:17","slug":"for-transition-cultivate-your-autism-community","status":"publish","type":"post","link":"https:\/\/susansenator.com\/blog\/2011\/10\/for-transition-cultivate-your-autism-community\/","title":{"rendered":"For Transition: Cultivate Your Autism Community"},"content":{"rendered":"<p>Just heard from a Facebook Friend that she is really bumming out over the Transition to Adulthood thing. Suddenly Post 22 is in the press; suddenly so many I know are thinking, &#8220;Uh, oh, what will happen when he\/she grows up and school is over?<\/p>\n<p>I have been there &#8212; I am there!\u00a0 And I don&#8217;t have the answer. All I can do is talk about what I&#8217;ve learned so far. The biggest, most important thing for any autism parent to think about with Autism Adulthood Planning is: Your Community!\u00a0 You go back in time, to the very people who helped you in the first place: other parents.<\/p>\n<p>It is the other parents who will connect with you both emotionally and pragmatically.\u00a0 You and the other parents have similar children, and now it is time to figure out just how similar they are.\u00a0 The thing to do Pre-22 is to get really social really fast with the Autism Community and make a match with another family.\u00a0 Here are some of things I&#8217;ve learned in this process of Transition to 22 for Nat:<\/p>\n<p>1) Attend workshops to learn about the programs and funding sources, but just as important:\u00a0 try to meet some people there. Get business cards printed, so you can give parents you like your contact info. Get their number and email. Start a file: Autism Parents I Like.\u00a0 Whatever.<\/p>\n<p>2) Write up a brief list of what is important for your young adult, or what he\/she says is important. I am thinking only of the first five years in terms of living goals. Don&#8217;t take on more than 5 years at a time.\u00a0 Think carefully about your adult child and imagine him at his happiest. Where is he? What is he doing? Who is he with? This is how your vision for his housing begins.<\/p>\n<p>Write up your list with stuff like:<\/p>\n<ul>\n<li>Kind of neighborhood he does best in<\/li>\n<li>Kind of activities he enjoys<\/li>\n<li>Need for public transportation? If he does well on public transportation, maybe you want him to live near a bus or subway or train so that, with assistance (or without) he can travel cheaply to other places, without needing a car or a van!\u00a0 Think about zipcar, or one of those rental agencies so that you don&#8217;t have own a vehicle for this purpose.<\/li>\n<li>What are his issues and challenges? How do you handle them?<\/li>\n<li>How much money are you, the family, able to contribute monthly to his care?<\/li>\n<li>Can he share a kitchen and bathroom?<\/li>\n<li>What is the largest ratio of staff to roommates your guy can handle? Nat is probably okay with 1:4.<\/li>\n<li>Can he be left alone at all? This is a dividing line.\u00a0 Being able to be alone opens more doors in terms of living situations.<\/li>\n<li>Who are his friends, and can any of them live with him?<\/li>\n<\/ul>\n<p>3) Once you have your list, you can copy it and hand it out to prospective &#8220;suitors&#8221; or roommates.<\/p>\n<p>4) Follow up with the families you like, and have a potluck dinner to get to know each other better.\u00a0 Find out if you are compatible, and if your children are. Are they too bossy?\u00a0 Are you? This is important to acknowledge before you partner up.<\/p>\n<p>It began with support groups.\u00a0 They saved you, right?\u00a0 They are the ones who always get it. They love your kid and you love theirs.\u00a0 It only stands to reason that when we all get older, they will be the ones we turn to again. Cultivate your peeps now!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Just heard from a Facebook Friend that she is really bumming out over the Transition to Adulthood thing. Suddenly Post 22 is in the press; suddenly so many I know are thinking, &#8220;Uh, oh, what will happen when he\/she grows up and school is over? I have been there &#8212; I am there!\u00a0 And I [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-2171","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/pSTth-z1","jetpack_likes_enabled":true,"jetpack-related-posts":[],"_links":{"self":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts\/2171","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/comments?post=2171"}],"version-history":[{"count":1,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts\/2171\/revisions"}],"predecessor-version":[{"id":2172,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts\/2171\/revisions\/2172"}],"wp:attachment":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/media?parent=2171"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/categories?post=2171"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/tags?post=2171"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}