{"id":2854,"date":"2012-06-03T10:50:51","date_gmt":"2012-06-03T14:50:51","guid":{"rendered":"http:\/\/susansenator.com\/blog\/?p=2854"},"modified":"2012-06-03T13:46:08","modified_gmt":"2012-06-03T17:46:08","slug":"autism-mommy-swami-6-give-yourself-a-break","status":"publish","type":"post","link":"https:\/\/susansenator.com\/blog\/2012\/06\/autism-mommy-swami-6-give-yourself-a-break\/","title":{"rendered":"Autism Mommy Swami #6: Give yourself a break"},"content":{"rendered":"

Dear Swami:<\/em><\/p>\n

Charlie is verbal and has quite good language, but very little social language.<\/em><\/p>\n

Some background stuff \u2013 my husband has been very ill and in hospital for nearly nine months.\u00a0 One month ago today, he finally had a heart transplant.\u00a0 He\u2019s been home now for about 10 days, and it\u2019s fabulous to have him home.\u00a0 Charlie loves Paul and is thrilled to see him every morning.\u00a0 He says a lot \u201cDaddy home.\u00a0 Daddy not go hospital\u201d.\u00a0 He wants to cuddle Paul all the time, he wants Paul to read him stories at bedtime (of course, by stories, I mean look at any book with a picture of a toilet in it, but I digress!). <\/em><\/p>\n

So that\u2019s all lovely, but\u2026 Charlie has become very controlling and manipulative of me.\u00a0 I know that it\u2019s the impact of such a huge change \u2013 a good change, but a huge one\u00a0 – but it\u2019s very hard to cope with.\u00a0 He hates it when I help Paul with anything, and the nature of Paul\u2019s surgery means that I will have to continue to help him a lot.\u00a0 We took him to the shops for an ice-cream this morning.\u00a0 He refused to hold hands, lay on the ground in the middle of the car-park screaming, demanded an ice-cream, then had another tantrum because he saw the bakery and wanted a cake, then another because he wanted to open the boot of the car, then another because he didn\u2019t want to get into the car, then another because I opened the door of the car\u2026you get the picture.\u00a0\u00a0 I am making the mistake of giving in to him because I don\u2019t have the physical or emotional energy to say no and deal with the fall-out right now.<\/em><\/p>\n

I could deal with it except I know he is perfect for anyone else. <\/em><\/p>\n

I don\u2019t really know what my question is.\u00a0 But still, do you have any advice?<\/em><\/p>\n

Thanks so much,<\/em><\/p>\n

Charlie’s Mom<\/em><\/p>\n


\n<\/em><\/p>\n

 <\/p>\n

Dear Charlie’s Mom,<\/p>\n

Thank you for writing and for your compliments. It is okay if you don’t formulate a question; the Swami can sense what you’re getting at. First, let me say that Charlie as you know has experienced a tremendous event in his life: his father’s illness, absence, return, and convalescence. Charlie also has a difficult time processing information due to his autism. And, Charlie is at an age where this sort of pulling away happens. This is true for any kid; once they get beyond 5 the will to independence is strong. It makes sense; as children grow and develop more and more neural pathways and connections in the brain are made through experiences and exposure to life. Awareness emerges. In our guys, maybe it is a more cloudy awareness. Maybe it is overly bright. I don’t know. But I do know that what you are experiencing is probably some natural dismay not only over the difficult behavior itself, but also over this developmental change, some confusion as to whether this is natural (and therefore “okay” on some level) or is it autism (and therefore “not okay”). Do you know what I mean by the latter? We are conditioned to believe that if it’s due to autism, it must be worked on, and if it is due to normal development, it is not mysterious and we can either wait it out or decide among popular parenting strategies what to do.<\/p>\n

But we have difficulty looking upon our autistic children as normal. So much of what they do causes us fear because we don’t have a model of what to do.<\/p>\n

But it doesn’t have to be that way. Think about what you would do if Charley were not autistic. You would give him some latitude, I think. Because neither of you has the psychological strength just now to work on this. If you are going through a period of extraordinary circumstances — and I would say that a husband’s recuperation from a heart transplant qualifies — you must give yourself a break. You must try and believe that at some point in the future, you guys will feel routines again, you will feel “normal” in many ways. Maybe not normal like my family — as if I’d ever call us that! — but normal in that stuff no longer feels new, sharp, and achy. Humans adjust to the most incredible situations, and I would bet that you already are somewhat easier about all this in your life than you were when Paul first came home.<\/p>\n

I know how hard it is that Charley is suddenly being challenging and demanding — and manipulative with you. You are wondering how you should stop it. You are wondering what you should be doing so that he isn’t always like this.<\/em> Should, should, should. As my wise father would say, “Forget your shoulds.” I would adjust that to say that in times of great stress, ease up on the shoulds. Charley is not going to act like a six year old forever. Even Nat, God bless him, grew out of wanting to pee on houseplants and tear up family photos for attention. Nat learned to sleep through the night at 8 years old. Nat learned not to pinch and scratch people when he was frustrated. You’ve read the book; you know that the bad periods do end.<\/p>\n

I know that definitive boundaries and consistency are important overall for children, and often especially those on the Spectrum, but the fact is, relationships are softer than that. Nothing lasts forever. So I think if you can let go of worrying about Charley’s behavior growing rigid and unchangeable, for a little while, you would feel more relaxed. Charley would sense this, and maybe he would relax a little, too. If you can do what I do sometimes and just shrug with a sigh and say, “Ick, I am so flawed. Oh well. We’ll survive.” Keep your focus on how loving Charley is with you, on your husband’s return to health, on your family’s wonderful resilience and know that when you are able, you will be able to deal with Charley’s challenging behavior. You might even find it goes away on its own. The behaviorists are not always right. Sometimes you just gotta be, give in, let go, and trust yourself that it will be okay.<\/p>\n

Love,<\/p>\n

Swami<\/p>\n","protected":false},"excerpt":{"rendered":"

Dear Swami: Charlie is verbal and has quite good language, but very little social language. Some background stuff \u2013 my husband has been very ill and in hospital for nearly nine months.\u00a0 One month ago today, he finally had a heart transplant.\u00a0 He\u2019s been home now for about 10 days, and it\u2019s fabulous to have […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[8],"class_list":["post-2854","post","type-post","status-publish","format-standard","hentry","category-uncategorized","tag-swami"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/pSTth-K2","jetpack_likes_enabled":true,"jetpack-related-posts":[],"_links":{"self":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts\/2854","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/comments?post=2854"}],"version-history":[{"count":5,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts\/2854\/revisions"}],"predecessor-version":[{"id":2859,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts\/2854\/revisions\/2859"}],"wp:attachment":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/media?parent=2854"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/categories?post=2854"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/tags?post=2854"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}