{"id":399,"date":"2008-10-06T06:21:00","date_gmt":"2008-10-06T06:21:00","guid":{"rendered":"http:\/\/susansenator.com\/blog2\/2008\/10\/questions-for-autism-parents\/"},"modified":"2008-10-06T06:21:00","modified_gmt":"2008-10-06T06:21:00","slug":"questions-for-autism-parents","status":"publish","type":"post","link":"https:\/\/susansenator.com\/blog\/2008\/10\/questions-for-autism-parents\/","title":{"rendered":"Questions for Autism Parents"},"content":{"rendered":"<p>There are some topics I wonder\/obsess about, that I am interested in including in my book.  The book is aimed at autism parents, but it is not strictly about parenting.  It is more about finding happiness while parenting.  I have talked to tons of people, but I still want to know the following, and feel free to send me your thoughts in a private email.  Always let me know if I have permission to quote you in the book, and to mention your child&#8217;s name and your state\/country.<\/p>\n<p>Here goes:<\/p>\n<p>What do you think of the concept of the Autism Spectrum?  Do you find the wide spectrum a helpful, applicable and relevant concept for your child and for your family&#8217;s needs?<\/p>\n<p>Do you think that diagnoses are most of the time accurate when kids first get them?  (I mean the first formal diagnosis of ASD)  Did your child&#8217;s diagnosis change in one way or another since then?  To what do you attribute that?  (faulty diagnosis? something you did that helped?  something else?)<\/p>\n<p>Aside from finding a cure, if that is what you wish for, <span style=\"font-weight: bold;\">what else<\/span> do you wish researchers would work on, or what is most needed <span style=\"font-weight: bold;\">to make your life easier<\/span> (education approaches; bona fide mainstream medical establishment research into the alternative biomed strategies like GF-CF, omega 3, and chelation; funding for family support; generous insurance; you tell me &#8230;?)<\/p>\n<p>Do you want to say anything about the earliest days, how you first knew about the oldest child&#8217;s autism?  <span style=\"font-weight: bold;\">What helped you, or what was not helpful <\/span>(stuff your doctor told you, something a family member did or said, etc.)?<\/p>\n<p>Also, do you go out with your friends much?  How do you manage it?  Do you have family to help?  Sitters?  A respite worker?  How did you find them?<\/p>\n<p>How are things feeling with your spouse? <\/p>\n<p>Do you all go on vacations together?  How do you do that?  Anything you have learned that makes it easier? <\/p>\n<p>What fun things do you do with your kids?<\/p>\n<p>Are you happy (<span style=\"font-weight: bold;\">you, yourself, not in terms of anything or anyone else<\/span>)  a) most of the time?<br \/>b) some of the time?  c)  almost never?<\/p>\n<p>Why do you think that is the case?<\/p>\n<p>Do you have a parent who would like to say something about <span style=\"font-weight: bold;\">having an autistic grandchild<\/span> and what was helpful to know about that grandchild?  Please have them contact me, if so.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>There are some topics I wonder\/obsess about, that I am interested in including in my book. The book is aimed at autism parents, but it is not strictly about parenting. It is more about finding happiness while parenting. I have talked to tons of people, but I still want to know the following, and feel [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[],"class_list":["post-399","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/pSTth-6r","jetpack_likes_enabled":true,"jetpack-related-posts":[],"_links":{"self":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts\/399","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/comments?post=399"}],"version-history":[{"count":0,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/posts\/399\/revisions"}],"wp:attachment":[{"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/media?parent=399"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/categories?post=399"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/susansenator.com\/blog\/wp-json\/wp\/v2\/tags?post=399"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}