Susan's Blog

Wednesday, January 2, 2008

How Do We Know?

This morning, Ben came down in a snit over his hair. He has baby-fine, lanky hair and it becomes easily tangled and full of static. He also was blessed with all of my stubborn cowlicks, so he has it rough when it comes to hair. He has a definite idea of what he wants to look like, (so familiar) so it was not surprising for me to see the odd clump rising in the back of his head, and then his hand wrenching it downward (to no avail), his teeth gnashing in rage.

I did not notice Nat, hiding his face behind his cereal box, grinning broadly.

All I saw was Ben, over-the-top angry, spitting nails at everyone, and saying, “And if you so much as smile at me again, I will rip your face off,” or something like that, at Nat.

“BEN!” I said. “I know that you’re mad about your hair and sad to go back to school, but you can’t put all of your feelings onto Nat and everyone else! It is NOT his fault!”

“Yeah, but he’s laughing at me!”

I looked and saw that Nat was hunkered down behind the Lucky Charms, and was indeed smiling. Oh, what do I do, I thought. Nat is laughing at him, technically, but that is because he is giddy and nervous (in general) and because of Ben’s anger. It is not actually Nat’s fault that he is laughing —

But wait, I then thought. To Ben, Nat is laughing at him. Ben doesn’t recognize the subtle difference of someone who is disabled and anxious and prone to giddy laughter who doesn’t intend to upset —

And then I caught myself again. How do I know he doesn’t intend to upset Ben? Why should I assume Nat can’t help it, when I know that he probably is actually laughing at Ben, though far more innocently than Ben thinks?

Why split hairs? Ben thinks that I am sticking up for Nat over him, and in a way, I am! I would never tolerate Ben laughing at Nat if Nat were upset by something. Is there some way I can remonstrate Nat but still be fair to him, knowing that his autism makes the situation subtly different in intent, but not different in appearance and outcome?

Here are the facts: 1) Ben is angry already, from having to go back to school, and having crappy hair.
2) Nat is laughing — and at him — but not because he thinks Ben looks stupid. He is laughing because of Ben’s anger vibes.

Was there a way I could discipline Nat that would be fair to Nat and teach him what was right, but that would satisfy Ben?

So I said, “Nat! You don’t have to laugh when you know Ben is upset!”
Nat said, “Yes,” and his voice slid down into a soft giggle.
I tried again. I said, “Nat! As the big brother, you should know better not to laugh when someone is upset.”

This time Nat was quiet. But he looked at me and something flashed in his eyes, something like, he was surprised at me. Something a little shocked, that seemed like he knew I was sacrificing him a little for Ben. This fear weighs especially heavily on me now, because tomorrow we are having a meeting with our educational team about putting Nat on a waiting list for housing at his school. He’s eighteen, he’s eighteen, I keep telling myself. But.

I checked in with Ben a little later, to see if what I had done had been worth it. Still angry, he said, “He’ll just forget it in five minutes!”
And I said, “Yeah, maybe, but that’s not his fault. That’s the disability, see?”

I don’t know if I did any good at all.

9 comments

Did ME good just reading about it! Thanks!

— added by Nancy Bea Miller on Wednesday, January 2, 2008 at 11:36 am

I think you did just fine. I beleive Nat can come to understanding that his reaction to someone can hurt or inflame their feelings. At least he was trying to hide behind the ceral box instead of being in Ben’s face. Now if he can learn to keep a straight face (Though I doubt I could, seeing a lil kid all frazzled) or do a bit more of the Mona Lisa (iffy smile) then maybe B won’t have to get angry about being amusingly cute while frustrated. (Whew)

— added by Patrick on Wednesday, January 2, 2008 at 12:49 pm

Being a mom is the hardest job in the world. For what it’s worth, I think you did a lot of good for both of them.

— added by KAL on Wednesday, January 2, 2008 at 1:14 pm

My siblings and I always laughed at the one of us who was angry or throwing a fit… It was our natural response. My Mom tried to be as fair as possible as a mediator, but she failed many times. It is hard when you have more than one kid!

Leila

— added by Anonymous on Wednesday, January 2, 2008 at 5:21 pm

On the other hand: isn’t this a life skill that the rest of us learned and benefitted from– don’t laugh at people. And shouldn’t Nat have the benefit of that info, same as the other skills he’s struggle to learn about living with people?

I think it did a world of good for Ben, but once will not be enough (for any of you three) to learn these lessons.

Courage!

— added by Sarai on Wednesday, January 2, 2008 at 9:54 pm

OMG!!! Susan — Julian’s hair is the same way, and yesterday, we began the terrible struggle of “convincing” Julian to get an emergency haircut! His reaction was the same as Ben’s. Max has 2 different reactions when his brothers are very upset: he either laughs (because the sound sometimes stimulates a nervous, tickly type of reaction) or he gets just as upset as they are (because the sound is distressing and painful to his ears). I don’t know that either reaction has to do with empathy or lack of empathy. Like you did yesterday, I try to sensitize Max to the fact that his laughter is hurting Julian’s and/or Sam’s feelings, and I have him apologize. I don’t know. How much control does an autistic individual have, when some outside stimulus tickles or inflicts pain upon his/her nervous system?
P.S.: I think our guys will look just as adorable with short hair, although they’ll never buy that!
– TPeacock

— added by Anonymous on Thursday, January 3, 2008 at 10:31 am

Another angle: As a sensitive little kid (okay, crybaby), my big brother took it upon himself with knuggies, wedgies, indian burns and firemen throws to teach me to laugh at myself. If he hadn’t, I might still think I look good with crimped hair, WAY too much blue eyeshadow, and drippy overglossed lips. Shudder.

Nat doesn’t like it when people laugh at him and you were right to tell him to stop. Ben’s hair doesn’t give him license to lash out. I am not unsympathetic to Ben, but sometimes we just need to get over ourselves.

— added by Lisa on Thursday, January 3, 2008 at 11:05 am

you were right on. you obviously love nate very much-but you love ben and max as well and you need to help them out from time to time. god…it will be so different when nat is out of the house. i bet that maybe, just maybe-ben will miss him more than anyone would think he would.

— added by Anonymous on Thursday, January 3, 2008 at 11:21 am

All I can say is… WOW, you’re an amazing Mom!

— added by MarkZ on Friday, January 4, 2008 at 3:44 pm