I am posting this golden summary of how to create a shared-living-style home for an autistic loved one, with permission from Cathy Boyle, President of Autism Housing Pathways. This is a crystalline explanation of how you, yes you, can make this happen in Massachusetts. Every state is different, but it’s likely that you can assemble something similar in your own state; just be sure to check with your state agencies about what is possible there. I have edited here and there.
Do not glaze over. Read what you can. Come back to it. Process, breathe, take your time to understand this. You can do it!
“Accessory” Apartments: An Adult Living Option
DDS (Department of Developmental Services) is increasingly emphasizing a residential option called “Shared Living” for those prioritized by DDS, (those with DDS Priority One residential funding) and “Adult Foster Care” for those who are not. However, unless the individual has at least a two-bedroom unit of his or her own, in such arrangements the provision of services is not separated from the provision of housing. Individuals may find themselves having to move every few years as support providers move on. This instability is not good for anyone, particularly those with autism.
Those not prioritized by DDS face daunting waiting lists for subsidized housing that meets their support needs. For instance, while state elderly housing may appear to represent a shorter wait than a portable Sec. 8 voucher (2 years versus 10-12), for those who need a two-bedroom unit to accommodate an Adult Foster Care caregiver, the waiting list for a state elderly two-bedroom unit may be 20 years.
As a result, the default option for families is to continue to have their child live at home, with a family member acting as the Adult Family Care support provider. This is not a sustainable, long-term solution. However, a two-bedroom “accessory (otherwise know as “in-law”) apartment, attached to the family home, may be. It allows the individual to stay put when the caregiver moves on; allows the family to provide respite; allows the family to act as the Sec. 8 landlord when a voucher is obtained; and, when the family moves out, can provide a source of rental income to help cover respite costs. The value of the Sec. 8 voucher can also help the family to make payments on any construction loan that was needed to add the accessory apartment.
There are two major barriers to this arrangement. One is zoning; many municipalities rigidly limit accessory apartments. The second is the cost of paying for any respite not provided by the family or through DDS individual supports, combined with payments on the construction loan. To address the first, Autism Housing Pathways has proposed municipalities consider adopting a model zoning bylaw, which would permit accessory apartments for elderly or disabled relatives of the homeowner as a “by right use.” (definition below)
Bill S. 708, currently under consideration,would help address the second barrier. It would allow homeowners to take out a loan from the state, potentially with deferred payments and 0% interest, for 50% of construction costs or $50,000, whichever is less.
This makes the following scenario possible:
At the higher end, the family might need to take out a home equity loan for $40,000. A smaller unit would obviously cost less, and could completely avoid the need for a home equity loan.