Susan's Blog

Tuesday, September 22, 2015

Good News for Nat

I kept getting reports from Nat’s Day Program — from a particular staff person — that were a bit negative in tone about Nat, such as how Nat was bumping into cars with the shopping carts, giggling too much. Yet everyone else’s interactions with Nat have been terrific. It’s been (almost) the sunny Nat of old. He is still quieter than I like, but he’s also more flexible and communicative. He seems to really understand a lot more that’s going on.

So I mentioned my concern to the program director, suggesting that perhaps Nat is sensing the staff person’s frustration and it is making Nat uncomfortable and thereby a bit anxious, loose, wiggly. Like maybe they are reacting off each other. This happens, right? We all have poor chemistry sometimes. And not everyone “gets” Nat at first. So… now they are observing the staff person and retraining! I am so impressed.

Today there was more good news. We and Nat’s Day Program have succeeded in moving Nat into a M-F work schedule, so that he will no longer be in DayHab at all! His earnings will pay for part of his job coaching and transportation, and hopefully he will eventually move out of being dependent on SSI (Supplemental Support Income) and will be able to move into SSDI (Social Security Disability Income). SSDI allows you to save more money without penalty. We are getting Nat onto our insurance once he is 26 so he won’t need Medicaid anyway. I feel like the less he needs from the government, the better, in so many ways.

7 comments

That is great that the program director acted on your concerns. Not everyone who works with our kids understands them. Sometimes all it takes is a little training. Good for you for speaking up and nipping that negativity in the bud!

— added by lisa clements on Tuesday, September 22, 2015 at 8:29 pm

Hi: Can you please explain what you mean by “we will get Nat onto our insurance once he is 26 so he won’t need Medicaid anyway”?
I thought ACA allows children to be covered by parents’ insurance UP TO age 26. Have you found a way for Nat to be covered by your insurance AFTER age 26? If the latter, can you please tell us how you set about doing that? Thanks! SS

— added by SS on Thursday, September 24, 2015 at 12:40 pm

Dear SS: Our insurance company (Blue Cross Blue Shield MIT)has a form you fill out to request the continuation of your post-26 childhood provided he has a lifelong disability. I recommend you ask your insurance company if they do this. Good luck!

— added by Susan Senator on Thursday, September 24, 2015 at 12:45 pm

Thank you! Our son is 14, so it’s a long way away, and who knows how the terrain will change by then, but I will keep this information handy. SS

— added by SS on Thursday, September 24, 2015 at 1:22 pm

@SS. I think most insurance companies are allowing this now. Much more advantageous to be covered under a good insurance plan imo too.

— added by Amy on Thursday, September 24, 2015 at 7:58 pm

Thanks for the additional information.
It’s good to know that most insurance companies are allowing this. Are these insurance policies part of the parents’ job benefits? Not individual family coverage? The question then arises what happens when the parent retires. Can the disabled child transition to Medicare along with the parent/s? – SS

— added by SS on Thursday, September 24, 2015 at 10:21 pm

I haven’t gotten that far. This is part of my husband’s job benefits. I am hoping that my son will transition into Medicare, definitely, just from working enough over time.

— added by Susan Senator on Thursday, September 24, 2015 at 10:29 pm