Susan's Blog

Friday, November 21, 2008

Seeking Autistic Wisdom

I am now calling for advice for parents, words of wisdom and encouragement and honesty (all or some of the above), from ASD adults, whether you are parents or not. Obviously one can’t generalize or apply all advice to all cases, but I’m sure there will be some important messages you’d like to convey to autism parents, along the lines of Amanda’s video or Jim Sinclair’s “Don’t Mourn for Us.” (In fact, if anyone can forward this to Jim or Amanda, I’d love to contact them myself, if that’s possible.) I am also interested in resources from ASD adults, whether blogs, books, or associations or organizations that have felt helpful, empowering, and/or informational to you; also conferences (like Autreat?) that parents can attend to help them feel less confused, and more able to nurture and to parent successfully.

If you have thoughts on various approaches that you feel are helpful for you (fun, educational, therapeutic?) please let me know. I would also like to know what has felt hurtful or harmful. This book is about spectrum: I have the full range of experiences here.

You do not have to post a comment; you can simply email me your responses and please indicate your first name, age, diagnosis, and location, and whether I can use your words.


This is brilliant, Susan. I of course have watched Amanda’s video (I was introduced to her about a year ago), and have “Don’t Mourn for Us” in my bookmarks, as I pass it out to students that I lecture twice a year.

— added by ASDmomNC on Friday, November 21, 2008 at 12:37 pm

Susan, you *can* contact Amanda & Jim directly through our Hub list. Send the email to Dave Seidel and ask him to forward it on your behalf. Or put something on the group forum.

— added by Niksmom on Friday, November 21, 2008 at 10:44 pm

Jim’s email address is

Amanda is harder to contact, but I’m sure you’re aware of her blog, and you can leave comments for her thru there. I’ve tried to email her in the past and never gotten a response, though.

Oh, here is her email:

They are both on different autism email lists I am on.

As far talking to adults on the spectrum, I think I qualify 🙂 What would you like to talk about? What would you like me to talk about? I would be all for being quoted in your book . 🙂
I’m a 24 year old Aspie, just moved to New York state 3 wks ago, you know me, we’ve talked, I’m from Maine…. my website about AS is at , and you can email me at


— added by Kate on Sunday, November 23, 2008 at 1:54 am

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