Susan's Blog

Wednesday, November 19, 2008

The Future Is Ours to See

What would make your life work better? What would help you the most, in terms of autism in your life?

I dug back into my book today, and I have to say I really like how it’s turning out. I love all the different people I have woven together chapter-by-chapter; the differences and the common denominators. It blows my mind how much we all have in common, and then again, how sickeningly alone we can be in this life.

Now the questions that keep popping up are: What should research and government put their energy towards? What is most needed in the coming years? What is most needed now? Why? How does your answer relate to your own life?

What would you like to see scientists focus on the most, about autism?

Where would you like to see money going, whether raised by private organizations or made available by the government?

What external development would allow you to be a happier person?

What do you need to do internally to be a happier person?

Please respond to any or all, thinking of how autism touches on your answers. Also, indicate your name and your child’s, as well as child’s age, diagnosis, and where you live. And make sure you give me permission to use your words and to call you. Pass this on to any autism parent you wish, I am looking for a diversity of perspectives. Think Spectrum!!

And thank you!!


I’m not a parent of an autisitc individual, but I do have Asperger’s and my older brother has classic Kanner’s. Do you want my input, or only those of parents?

— added by Cale on Wednesday, November 19, 2008 at 3:13 pm

I certainly would like to hear from you, I think it would an important perspective. I would use it if I can, but of course I can’t guarantee that it would work with my format. But yes, I would love to hear anything you have to say!

— added by Susan Senator on Wednesday, November 19, 2008 at 3:55 pm

I’d like to see more money going into treatment and therapies. We’re going to need so much help as our kids get older. That and ways to mainstream and acclimate them into the world when they become adults.

What do I need to be a happier person? My son to ask me questions, converse with me, eat food other than lollipops and pudding, go to the toilet.

You know the rest and where to find me.

— added by Someone Said on Wednesday, November 19, 2008 at 5:57 pm

I’m a mom of a 6 year old little boy with HFA. I also am a SLP who works in EI and involved in dx ASD in young children and bringing up ASD concerns for the first time to parents. Personally, what I’ve struggled with the most is accepting that my son does in fact have ASD, I can’t “beat” the ASD no matter how much intervention I do with him, and the intense pressure from the extremists in the field to either “cure” or embrace the ASD. It has been a hard journey for me, but I’m making progress. D is who he is, and if often, happy, but yet often plagued by extreme emotional outbursts and meltdowns that try our every day life as a family. I know he is hurt by his actions, too, and wants “to learn to be good.” This is not to mention all the exhausting battles and lack of support from family members, insurance companies, medical doctors and so on. If you’d like to talk me, let me know. I’ll email you personally.


— added by Anonymous on Friday, December 5, 2008 at 3:41 am