Susan's Blog

Wednesday, July 15, 2009

Please Act To Ensure Autism Insurance Coverage

From Autism Mom Shelley Hendrix:

Whatever your thoughts are with regard to the national health reform discussion, whatever your party politics are, I want you to think about this. Children with autism deserve appropriate health care coverage for their medical condition. Some children in some places have access to that. Most children with autism in most places do not.

The health reform ship has sailed and autism insurance reform is not on it but it will sure reflect in the changes from Obamacare compared to Trumpcare.

H.R. 3200 is currently in mark up and our hope of acheiving autism insurance reform as part of the larger health reform initiative will require an amendment. We can get that if we can be loud and generate thousands of phone calls into Speaker Pelosi’s office over the next couple of hours.

Here is how you can help:

1. CALL Speaker Nancy Pelosi’s office at 202-225-0100 and tell her office that health insurance reform that does not stop autism insurance discrimination is unacceptable.

All you have to say is this:

“Hi. My name is ________. I believe that health insurance that does not stop autism insurance discrimination is unacceptable and I am counting on Speaker Pelosi to be sure that children with autism have appropriate coverage for the treatments and therapies they deserve access to for their medical condition. Thank you.”

2. GET EVERYONE YOU KNOW TO DO THE SAME AND MULTIPLY YOUR EFFORTS! You need to get 20 people in your life MINIMUM to call within the next two hours and you must keep the pressure up and keep the pressure on if you want to see this for your children.

For more information on what autism insurance reform can do for you visit either or you can read my blog at Huffington Post at

This is urgent if you want this. All children deserve this. From coast to coast.

Shelley Hendrix



– TPeacock

— added by Anonymous on Wednesday, July 15, 2009 at 5:10 pm

Thanks so much for this Susan!

— added by Judith U. on Wednesday, July 15, 2009 at 5:20 pm

Oh, not only THAT, but I heard that the publicly available health insurance plan wouldn't even cover birth control!

— added by Shannon Davis on Wednesday, July 15, 2009 at 6:09 pm

Except that autism is not, in itself, a medical condition, and we don't want it classified as one. ABA is not a medically necessary treatment, and we believe it to more harmful than helpful for autistic children.

Any child should be able to receive the ST/OT/PT they need, but this bill is just wrong.

— added by Clay on Thursday, July 16, 2009 at 12:27 am

Pushing for ABA to be covered under under insurance will be a logistical nightmare. The insurance companies will never properly fund it and it will be a bigger problem to get it covered in the long run this way. The districts should be funding ABA as this is educational and falls under IDEA (which SHOULD be fully funded by the federal government).

— added by Anonymous on Thursday, July 16, 2009 at 8:20 am